You can read about her in this blog, where I wrote about her first book "Still Alice". Her goal is to raise awareness of unusual but devastating illnesses.
In this book, "Every Note Played", she writes about ALS. I was very interested because I have been close to two people who lived with this disease.
Lisa Genova is able to put all the necessary science into the book, but also include very basic human emotions of love, guilt, regret. Her writing is amazing.
Plot:
The protagonist, Karina had been married to Richard, a concert pianist, but the marriage dissolved in anger and hatred. However, when Richard was diagnosed with ALS and was no longer able to care for himself, Karina invited him back to the family home. He had run out of money and there were no other options. Here, in the family home, his physical needs were met, but the anger of his wife and daughter filled the home.
Lisa Genova's writing is fascinating:
"She can feel the razor-sharp point of every edge between Richard and her, but she assumed their animosity was traveling on a private, restricted highway."
Because the author is a neuroscientist, ALS is described in minute detail, perhaps a little too much. Her interest in this disease began when her book "Still Alice" was being made into a movie. One of the writer-directors, was in the early stages of ALS and she learned from him, the details of life with ALS. She later met many people who inspired and encouraged her in her desire to teach the world about this very devastating disease.
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